tag:blogger.com,1999:blog-329867342024-03-13T05:06:20.415-05:00Copley CrewThe Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.comBlogger121125tag:blogger.com,1999:blog-32986734.post-52652870766188571942011-08-24T10:19:00.001-05:002011-08-24T10:22:48.282-05:00<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-3ddHtNzz9mo/TlUMf_X_VPI/AAAAAAAAA6M/mGqQgzNqfI0/s1600/Top.bmp.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-3ddHtNzz9mo/TlUMf_X_VPI/AAAAAAAAA6M/mGqQgzNqfI0/s320/Top.bmp.jpg" width="247" /></a></div>So Dr, Fisher said that the IRP team has been seeing her for a year now. All the test that they have run have given them no answers, no definition to her Autoimmune enteropathy diagnosis that Cincinnati gave her 2 years ago. Nothing that they have tried to do has worked for her to get her to tolerate her feeds. or eating orally. She is fully dependent for 22 hours a day on TPN with lipids. (No that is not her rolling backpack for school she is carrying around, it is about 10 pounds of her daily nutrients and calories being pumped into her heart) The other 2 hours of "Tube free time" she has Ethanol injected into her central line to keep her from getting another life threatening infection. They are stopping her anti-rejection meds and weaning her off her prednisone that she has been taking for 8 years. They want to "clean the slate" and see what her body does, since "they" themselves have never seen Hannah have over 30 bouts of diarriah in 24 hours, or puke up everything she eats, and been in a normal pain scale range of between 6 - 8... daily, her "clean slate" normal! I do not look forward to the next few months, having to watch her live a life of being Undiagnosed is more frustrating than if I had to live with myself. At 10 years old Hannah is the strongest person I know!<br />
So we call in her weight weekly and then they will plan on surgery for scopes and biopsies to see what her Lil 27 kilograms body does on it's own, when it fully rejects her stomach and intestines, Please pray for her. <br />
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</div><div align="center">Hannah at her IRP appt. August 23, 2011</div><div align="center"><br />
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</div><div align="center"></div><div align="justify"></div><div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-4gx7BXMp8Zk/TlUWMfLQ1QI/AAAAAAAAA6U/i_xs88Z9qo0/s1600/images1-2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-4gx7BXMp8Zk/TlUWMfLQ1QI/AAAAAAAAA6U/i_xs88Z9qo0/s320/images1-2.jpg" width="247" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-10250389618684678692011-05-08T09:23:00.000-05:002011-05-08T09:23:56.951-05:00Hope 4 Hannah Benefit<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-pVA3JH0aSNQ/TcamTpIjhkI/AAAAAAAAA1k/5bOqVnlAZ5E/s1600/FLYER1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="http://3.bp.blogspot.com/-pVA3JH0aSNQ/TcamTpIjhkI/AAAAAAAAA1k/5bOqVnlAZ5E/s400/FLYER1.jpg" width="308" /></a></div><br />
For more details go to <br />
Facebook group <a href="http://www.facebook.com/#!/home.php?sk=group_314212890026">Hope 4 Hannah</a><br />
click here to RSVP <a href="http://www.facebook.com/#!/event.php?eid=203943776312784">H4H Benefit</a>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-89477189994781031332011-03-25T19:36:00.000-05:002011-03-25T19:36:42.084-05:00<div class="separator" style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-DLwlW8JNZhA/TY00bbrFgfI/AAAAAAAAAvc/kEnH4kFYEEo/s1600/055-1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="247" r6="true" src="https://lh4.googleusercontent.com/-DLwlW8JNZhA/TY00bbrFgfI/AAAAAAAAAvc/kEnH4kFYEEo/s320/055-1.JPG" width="320" /></a></div><br />
So today the nurse cordinator called me from Omaha. I quickly caught on to that sound in her voice as she tried to pump me up with encouraging words about this Transplant eval. I relived a few weeks a go when they were wheeling her into PICU and the "Team" of docs ( who just a few months ago also said They WERE the last resort) That we may never know what Hannah"s exact DX is and that everything they do beyond this is experimental.<br />
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So why Transplant? Well they do know that Hannah's immune system is rejecting her own intestines. Because of the lack of nutrition because she absorbs absouletly nothing she eats, She is dependent for her total calorie intake apon a 2 liter bag of TPN that runs 16 hours a day. This has to be ran through a broviac central line that runs to the valves in her heart.<br />
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The problem is they have tried antirejection meds with no theraputic results enough to get her off the TPN in 2 years. hannah has had several life threating infections and line issues that has caused her 15 line placement procedures. which is where lies the even bigger problem. When she loses a line she lose that access point. she is very seriously close to losing all access.<br />
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So then the next step would be to try a transplant of her organs and hope that she does not reject that too. Bone marrow transplant is still on the table but there has been no surviving pediactric patients for them to really know if this would be beneficial for her or not. The reality is she only has a 60 percent chance of surviving a year with the bowel transplant. All i can hear is 4 years ago the docs telling me she wouldn't make it to 10. She turns 10 in June. I am not ready to let her go! We will fight to theres no fight to fight!<br />
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<photo 3="">The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-37187168482890420732011-01-30T18:39:00.002-06:002011-01-30T18:45:00.238-06:00I Love my tubie :)<div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/_BVpwM1nDxSo/TUYEfXWhvLI/AAAAAAAAAvM/4Aqy3YN6SYg/s1600/2011-01-30.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" s5="true" src="http://1.bp.blogspot.com/_BVpwM1nDxSo/TUYEfXWhvLI/AAAAAAAAAvM/4Aqy3YN6SYg/s400/2011-01-30.jpg" width="400" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-13392896083519771062010-12-02T06:46:00.000-06:002010-12-02T06:46:51.791-06:00Feliz Navidad!<iframe width="480" height="295" src="http://www.youtube.com/embed/yOtZmot5-ks?fs=1" frameborder="0"></iframe>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-19539209666863433782010-11-09T07:14:00.000-06:002010-11-09T07:14:16.930-06:00Food Matters Official Trailer<p><object style="BACKGROUND-IMAGE: url(http://i3.ytimg.com/vi/r4DOQ6Xhqss/hqdefault.jpg)" width="480" height="295"><param name="movie" value="http://www.youtube.com/v/r4DOQ6Xhqss?fs=1&hl=en_US"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/r4DOQ6Xhqss?fs=1&hl=en_US" width="480" height="295" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash"></embed></object></p><p> </p><p> </p><br /><br /><br /><br />Autoimmune enteropathy. Her body's immune system attacks her own God given organs but doesn't protect her from a common cold. Just ask Hannah how much Food Matters! Time to shake up this world and wake 'em up!The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-23756103605663830592010-10-24T16:36:00.000-05:002010-10-24T16:36:45.427-05:00October 2010<object style="BACKGROUND-IMAGE: url(http://i3.ytimg.com/vi/ZhThwPFnVyE/hqdefault.jpg)" width="480" height="295"><param name="movie" value="http://www.youtube.com/v/ZhThwPFnVyE?fs=1&hl=en_US"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/ZhThwPFnVyE?fs=1&hl=en_US" width="480" height="295" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash"></embed></object>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-14975294021880860182010-10-10T18:56:00.000-05:002010-10-10T18:56:27.281-05:00The First of Autum.<object style="BACKGROUND-IMAGE: url(http://i2.ytimg.com/vi/QZ5k7guorQ0/hqdefault.jpg)" width="425" height="344"><param name="movie" value="http://www.youtube.com/v/QZ5k7guorQ0?fs=1&hl=en_US"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/QZ5k7guorQ0?fs=1&hl=en_US" width="425" height="344" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash"></embed></object>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-12314075393969521922010-08-16T12:40:00.002-05:002010-08-16T12:40:34.245-05:00Holiday Horsepower Drive and Eagle Raceway<object height="300" width="400"><param name="allowfullscreen" value="true" /><param name="allowscriptaccess" value="always" /><param name="movie" value="http://www.facebook.com/v/1322886643131" /><embed src="http://www.facebook.com/v/1322886643131" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="400" height="300"></embed></object>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-59878920163573199212010-08-06T12:10:00.000-05:002010-08-06T12:10:46.731-05:00The importance of medcation routesAs most of you know, Hannah does not eat. All her nutrition is supplied and routed through various ports in her body. <br />
Route #1 a central line that goes straight to her heart. <br />
Through this she receives her TPN and<br />
various IV meds. <br />
Route #2 a G-Button that goes straight to her stomach. <br />
Through this she receives her meds <br />
for her Acute Gastritis and bleeding ulcers.<br />
Route #3 a J-Button that goes straight to her intestines.<br />
Through this she receives her Neocate<br />
formula and other meds that need <br />
to avoid her stomach.<br />
<br />
Over the years I have struggled with the mislabeling of some of her medications when it is concerning the route. and still struggle to this day with this issue even in her care plans with home health. <br />
<br />
In May this article came out in the news from Omaha.....<br />
<a href="http://www.ketv.com/news/23736156/detail.html">Officials said 19-month-old Alicia Coleman died at Children's Hospital </a><br />
<br />
Such a terribly devastating incident for all people involved spurred me into action when it came to Hannah's routes, so this is what we do now with a lil help of some nail polish :) <br />
It has made life much more simple and as one of our nurses said "made our job easy!" <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/_BVpwM1nDxSo/TFxAT4_05nI/AAAAAAAAAug/K6tKQMrjHqc/s1600/2010-06-06.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" bx="true" src="http://2.bp.blogspot.com/_BVpwM1nDxSo/TFxAT4_05nI/AAAAAAAAAug/K6tKQMrjHqc/s320/2010-06-06.jpg" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-49464192661518585422010-07-24T09:46:00.000-05:002010-07-24T09:46:30.620-05:00Our God is greater<object style="BACKGROUND-IMAGE: url(http://i4.ytimg.com/vi/CuFYZgv9DlM/hqdefault.jpg)" width="480" height="295"><param name="movie" value="http://www.youtube.com/v/CuFYZgv9DlM&hl=en_US&fs=1"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/CuFYZgv9DlM&hl=en_US&fs=1" width="480" height="295" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash"></embed></object>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-22453247770908564612010-06-17T13:03:00.001-05:002010-06-17T13:04:04.029-05:00cookies.wmv<object height="344" style="background-image: url(http://i4.ytimg.com/vi/ONGVcZ8MUCE/hqdefault.jpg);" width="425"><param name="movie" value="http://www.youtube.com/v/ONGVcZ8MUCE&hl=en_US&fs=1"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/ONGVcZ8MUCE&hl=en_US&fs=1" width="425" height="344" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash"></embed></object><br />
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CopleyCrew baking cookies :D This weekend marks 1 year since Hannah has been allowed to eat anything, yet she loves to cookThe Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-76447027180494534512010-06-10T12:38:00.000-05:002010-06-10T12:38:14.568-05:00Love Story (Country Version) recorded by Beckie | -MySpace KaraokeCheck this out and watch Hannah doing karaoke :)<br /><br /><a href="http://ksolo.myspace.com/actions/showSongProfile.do?rid=2242069&sid=27818&uid=6530793&sms_ss=blogger">Love Story (Country Version) recorded by Beckie -MySpace Karaoke</a>: "MySpace Karaoke video/audio recording of Taylor Swifts Love Story (Country Version), as performed by Beckie. Watch it on MySpace Karaoke. Think you can do better? Record your version now!"The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-16948751468205695332010-05-07T08:11:00.000-05:002010-05-07T08:11:25.998-05:00Courage Is - The Strange Familiar [Full Song]<object style="BACKGROUND-IMAGE: url(http://i4.ytimg.com/vi/cXrWRM0E6YA/hqdefault.jpg)" width="425" height="344"><param name="movie" value="http://www.youtube.com/v/cXrWRM0E6YA&hl=en_US&fs=1"><param name="allowFullScreen" value="true"><param name="allowscriptaccess" value="always"><embed src="http://www.youtube.com/v/cXrWRM0E6YA&hl=en_US&fs=1" width="425" height="344" allowscriptaccess="never" allowfullscreen="true" wmode="transparent" type="application/x-shockwave-flash"></embed></object>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-83909755811711245692010-05-01T10:13:00.001-05:002010-05-01T10:14:31.591-05:00<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/_BVpwM1nDxSo/S9xDimvvVvI/AAAAAAAAAuQ/HnvnLXLkE9c/s1600/untitled.bmp" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/_BVpwM1nDxSo/S9xDimvvVvI/AAAAAAAAAuQ/HnvnLXLkE9c/s320/untitled.bmp" tt="true" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div style="text-align: center;">Nebraska Methodist College students, several of Zeta Iota Chi's (Nebraska Methodist College's Sorority) members and Campus Crusade, had over 30 people buy shirts and will be running in support of Hope 4 Hannah. What an absolutley awesome bunch!! Get out there and support them in their bright pink Hope 4 Hannah singlet Sunday May 2!</div> <br />
<div style="text-align: center;"> <a href="http://www.huskerextra.com/articles/2010/04/01/football/doc4bb54f38dcd39760426580.txt?orss=1">Lincoln Marathon will end inside Memorial Stadium</a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/_BVpwM1nDxSo/S9xE0DMLEJI/AAAAAAAAAuY/Z4_BKI6M9sw/s1600/memorial-stadium_cc.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/_BVpwM1nDxSo/S9xE0DMLEJI/AAAAAAAAAuY/Z4_BKI6M9sw/s320/memorial-stadium_cc.jpg" tt="true" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-61541367451545703262010-04-28T21:02:00.000-05:002010-04-28T21:02:47.422-05:00click here to check out the story Lance Schwartz with 1011 out of Lincoln did on Hannah!<br />
<br />
<br />
<br />
<a href="http://www.1011now.com/home/headlines/92371224.html">Lance's Journal with Hannah about Make-a-Wish</a><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/_BVpwM1nDxSo/S9johqcLXHI/AAAAAAAAAuA/QFAhCabpBjU/s1600/024-2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/_BVpwM1nDxSo/S9johqcLXHI/AAAAAAAAAuA/QFAhCabpBjU/s320/024-2.jpg" tt="true" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-83704126537799473412010-04-03T09:20:00.000-05:002010-04-03T09:20:08.527-05:00miss me? :)Let me start this update by mentioning that with our recent change in respite care qaulifications, We have found a nurse who can work with Hannah for up to 20 hours a week. This makes me sooooo Happy!! For 1, I have 3 other children. 2, I have my own medical issues that I have been neglecting 3... well you get the point. <br />
Hannah received her DX of Autoimmune Enteropathy after our visit in Cincinnati. It has been almost a year, and I am utterly shocked to still realize how rare and "still being researched" this desease is. I have, through a Facebook group page ( Hope 4 Hannah) found a handful of Moms from all over the world, that have children with this and are struggling for information just as much as me. In search of some kind of support group, realizing that the few of us maybe our only support group! I find how much it is needed when the doctors skirt around issues, because they just don't know. Issues like being on an anti rejection medication forever (Tacrolimus in Hannah's case) which is comparable to receiving chemo, is the only treatment for this desease. <br />
For the last 2 years, Hannah has been home schooled. She has not been able to eat for a year, she has a central line and is fed Tpn 24 hours a day and has formula feeds running through a J- button. The doctors have been battling keeping her prograf levels stable, and slowly moving up her feeds so she can stop the TPN. but now she has gastritis and an ulcer in her tummy from the bile back up. She continues to throw up at least 3 -4 times a day, mostly during med time. We have had numerous issues with her central lines! Broviac were just not Hannah proof and she would wear a pinhole in them constantly, we changed to a purple power line, which is resiant to breaking. That has worked well, but her chronic line infections have not fixed the need to pull and replace these lines constantly. they say she is multivisceral transplant canidate. so salvaging these lines are the prime concern. They believe her intestines are leaching bacteria in her bloodstream (like a colander) and setting up a home in her line. <br />
When we left the hospital last week they told me her Bard polyurethane purple power central line was not compatible with an ethanol lock. But Thursday the Doc said she consulted with the other Docs on the other side of our huge planet. So Monday after her IV antiobiotics stop, and starting prophylactic ethanol lock therapy for 2 hours a day. yes, I will be injecting gas into my lil girl! WHAT NEXT! Which (like everything else Hannah deals with) does not have alot of literature on. So we are praying this works! and does'nt eat up the line in process! <br />
She also has had issues with low hemoglobin. She had her second blood transfusion on the 19th, and last week it was running low again. As hard as TPN is on her organs, We have seen what putting nutrients into hannahs body enternally has done for externally. she has went from 30 pounds last year to 50 pounds currently, As well as put on a couple inches, She has grown all her hair back, She looks healthier now then when she was a baby.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/_BVpwM1nDxSo/S7dOITSvG7I/AAAAAAAAAt4/qiYwx4fEbsM/s1600/2010-04-031.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="142" nt="true" src="http://2.bp.blogspot.com/_BVpwM1nDxSo/S7dOITSvG7I/AAAAAAAAAt4/qiYwx4fEbsM/s400/2010-04-031.jpg" width="400" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-78282951262576375302010-03-11T12:30:00.000-06:002010-03-11T12:30:12.725-06:00Updates to come... I promise :)<div class="separator" style="clear: both; text-align: center;"><br />
<a href="http://1.bp.blogspot.com/_BVpwM1nDxSo/S5k2Q7c6-_I/AAAAAAAAAtw/uAPt9l-mbks/s1600-h/hannah+019.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/_BVpwM1nDxSo/S5k2Q7c6-_I/AAAAAAAAAtw/uAPt9l-mbks/s320/hannah+019.JPG" vt="true" /></a></div><div class="separator" style="clear: both; text-align: center;">Hannah is remaing stable, Doctor appointments in Omaha went good yesterday. I will update more soon!</div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-3375521906455826922010-02-27T12:00:00.002-06:002010-02-28T07:39:50.997-06:00Hannah's Wish is Granted!<div xmlns="http://www.w3.org/1999/xhtml"> Make a Wish granted Hannah's wish Thursday with a huge all day shopping spree in Omaha. Hannah had a blast with her family, wish granter's, and her "body guard" limo driver.<br />
As her mother I can't express enough gratitude for giving Hannah the chance of a lifetime, it was truley a wish come true!<br />
<br />
<object height="350" width="425"><param value='http://youtube.com/v/S2pedgg1OVw' name='movie'/><embed height='350' width='425' type='application/x-shockwave-flash' src='http://youtube.com/v/S2pedgg1OVw'/></object></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-80789154275577450552010-02-16T09:54:00.001-06:002010-02-16T09:55:24.483-06:00Home Sweet Home<div class="separator" style="clear: both; text-align: center;">After 19 days in the hospital, Hannah has come home!</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/_BVpwM1nDxSo/S3q_dzkNKqI/AAAAAAAAAtY/6jSCQWtMeNg/s1600-h/002.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" ct="true" height="300" src="http://1.bp.blogspot.com/_BVpwM1nDxSo/S3q_dzkNKqI/AAAAAAAAAtY/6jSCQWtMeNg/s400/002.JPG" width="400" /></a></div><div style="text-align: center;"> Long drive home was shortened with a long sweet nap :)</div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-58882031666764920352010-02-10T09:39:00.002-06:002010-02-10T09:46:03.160-06:00what an absolutley beautiful story Brian Mastre did on Hannah! We are so honored!<br />
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click here-> <a href="http://www.wowt.com/home/headlines/83772577.html">www.wowt.com/home/headlines/83772577.html</a><a href="http://www.wowt.com/home/headlines/83772577.html"></a>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-2508948414423228722010-02-06T07:33:00.001-06:002010-02-06T07:34:15.038-06:00February 6, 2010well we had a another rough spell, They started running TPN through Hannah's IV and it went downhill from there. Hannah's poor little veins are exhausted, after finally getting a iv started Wednesday night, It only last 12 hours. After an emmotional episode our charge nurse was able to start another in her 1 and only vaible vein left in her arm. If this one goes they will try her feet next. They stopped the TPN and are running basic maintenance fluids through it now, to try to get this IV to last longer. She is now officially out of renal failure, Her kidneys and liver are back to normal levels. Her labs are still coming back positive for yeast in her bloodstream, so they still have her and antibiotics and antifungals. Thursday they did an ultrsound of her heart and found a thrumbos (blood clot) as of yet I have no idea what they are going to do about that. The Hospitalist has been consulting with oncology and cardiology. They think it's a source of infection for the yeast, so to give her an anti coagulant might put the yeast in other places they dont want it right now, but to leave it is also risky if it were to break off and move into her heart or brain. <br />
Yesterday was a nice calm day. with no TPN running she was much more comfortable and even got to go to Movie Night to go watch "UP" in the auditorium last night. They will be taking her down for surgery today or tomorrow to place a temporary line so they can start back up TPN. They said the line will just be temp, because they know full well it will get infected with the yeast, but she needs the access to give her her nutrition. <br />
Hannah is the strongest person I know! she has done all this without taking ANY of the moriphine they have ordered for her. <br />
<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/_BVpwM1nDxSo/S21vbXxuNII/AAAAAAAAAtQ/Q536hkuzmEE/s1600-h/006.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" kt="true" src="http://3.bp.blogspot.com/_BVpwM1nDxSo/S21vbXxuNII/AAAAAAAAAtQ/Q536hkuzmEE/s320/006.JPG" /></a></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-89633031230911614682010-02-03T08:52:00.000-06:002010-02-03T08:52:25.287-06:00<div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><a href="http://1.bp.blogspot.com/_BVpwM1nDxSo/S2mNWsP_TEI/AAAAAAAAAtI/jBeTkQvPwZM/s1600-h/030.JPG" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" kt="true" src="http://1.bp.blogspot.com/_BVpwM1nDxSo/S2mNWsP_TEI/AAAAAAAAAtI/jBeTkQvPwZM/s320/030.JPG" /></a>Yesterday was a busy day! we all pushed Hannah a lil, and got her out of bed and into a bath, and even walked her to the playroom for a Game of WII with Dr. Dolterand Melissa. While she was busy I got a chance to go shopping with Sharon and Carole (Sharon's sister) Thak you Girls!! I so needed that :) When we got Hannah back to her room, She got a visit from the Rosenquest's. So nice to see people from home!! Makes me homesick. Then Channael 6 swooped in to do a story on Hannah and autoimmune enteropathy, which will air Sunday. Wow what a day, right?! </div><br />
<br />
It wore her out, she ended the evening with a sore throat on top of her tummy pain. and then had 1 of her 2 iv's go bad and had to be pulled out. They started running TPN and lipids through the other (which is extremely painful and hard on your veins). <br />
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<div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">This morning Doc says he is checking with renal to see if her creatinine is low enough that her kidneys can handle contrast for a MRV of the veinous system, so they can map out where her new line will go. and get that surgery in the works. Her white blood cell count was elevated this morning so we are watching her sore throat closely. When you are immune compromised the littlest thing can go severe very fast. </div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/_BVpwM1nDxSo/S2mMcrjAhGI/AAAAAAAAAtA/IMOmzTI5wzA/s1600-h/033.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" kt="true" src="http://2.bp.blogspot.com/_BVpwM1nDxSo/S2mMcrjAhGI/AAAAAAAAAtA/IMOmzTI5wzA/s320/033.JPG" /></a></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">We had almost 100 people join the Hope 4 Hannah Facabook group in 24 hours. Hannah was excited to see the numbers climb! Thanks so much for all your support! </div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
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<div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">Love, Blessings, & Barefeet, </div><br />
Beckie<br />
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</div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-63068643400985492762010-02-01T08:13:00.000-06:002010-02-01T08:13:27.640-06:00February of 2010 already....<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/_BVpwM1nDxSo/S2bZ2chSyAI/AAAAAAAAAs4/qYKvLNp8hpA/s1600-h/004.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" kt="true" src="http://4.bp.blogspot.com/_BVpwM1nDxSo/S2bZ2chSyAI/AAAAAAAAAs4/qYKvLNp8hpA/s320/004.JPG" /></a></div><div class="separator" style="clear: both; text-align: center;">Well, Hannah has been quite sick the last 5 days. Thursday morning Hannah woke up screaming and crying that her stomach hurt. I checked her temp and it was 103. I made some calls to home health and checked her temp again and it was 103.7. Called ambulance, by the time they got her to ER (which was not very long) It was 104.7. They admitted her to Mary Lanning and fought off temps all day. By the next morning they discovered she had staph and yeast infection in her Central line. and she was transferred by ambulance to Children's here in Omaha.</div><div class="separator" style="clear: both; text-align: center;">Hannah is septic, whichs means she is as sick as she possibly can get. the infection is in her blood and all through her body, causing all her organs to not function properly. Her liver and spleen are inflamed. Her kidneys are not functioning properly and she may have to receive dialysis. Appendicitis is also in question, but she is still to septic for it to be removed. They pulled out her brand new purple power line and she has 2 IV's (1 in each hand) to receive all her fluids and medicines. Yesterday she was more coherant, the fevers have stopped after they pulled her line, so that helps. Sharon's sister came out to visit and her and Sharon brought her some ballons which helped brighten up her room. I plan on trying to do more of that today to help cheer Hannah up.</div><div class="separator" style="clear: both; text-align: center;">I can't thank everyone enough for all the prayers we most certainly need it right now! And please don't forget to pray for Hannah's sisters and brother. They last time they seen their sister was when she was rushed out the door with 5 EMT's right b4 they left for school. </div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0tag:blogger.com,1999:blog-32986734.post-22891536439868391642010-01-09T08:32:00.001-06:002010-01-09T08:32:52.791-06:00Infection Control: Precautions and Sterile Dressing Changes<div xmlns='http://www.w3.org/1999/xhtml'><p><object height='350' width='425'><param value='http://youtube.com/v/w7bJ4rMhfXE' name='movie'/><embed height='350' width='425' type='application/x-shockwave-flash' src='http://youtube.com/v/w7bJ4rMhfXE'/></object></p><p>This video needs to be watched by anybody who comes in contact with Hannah! and if you work at MLMH on the ped floor... watch it 2 times!! yeah I sooo went there! </p></div>The Copley'shttp://www.blogger.com/profile/12809780252389068134noreply@blogger.com0