Wash your Hands!!

With School starting this week, this is a very big concern of mine for Hannah, my lil bubble girl...did I mention that we live in Adams Co. !?

2nd H1N1 Flu Fatality in State

A spokeswoman with the Nebraska Department of Health and Human Services says the second state resident to die from the swine flu passed away at an Adams County hospital. The Adams County woman in her 50s died late last week. The woman also had several chronic, underlying health conditions, a press release states, including asthma, heart disease and diabetes. Because of state statutes, the woman’s name and other details about her case cannot be released. The state's chief medical officer, Dr. Joann Schaefer, said the virus, also known as the H1N1 flu, can be a very serious illness for those who have chronic health conditions. Federal officials have said the flu strain could kill possibly 30,000 to 90,000 people later this year, mostly young children and young adults. Seasonal flu typically causes 30,000-40,000 annual deaths, mainly among people over 65. Health officials advise only those who are moderately or severely ill or someone with underlying medical conditions see a doctor. Most people who get the virus can recover on their own, they said.

August 26, 2009

Thanks for the prayers everybody, yesterday was a whirlwind! I have a bad case of bronchitis and am struggling to breathe, had extensive conversations directly with Dr. Zapatta, 3 times yesterday, Hannah's liver is failing due to the lack of use, so they r starting her feeding pump back up, slowing weaning her on to that. And still running the TPN . 2 pumps running 24 hours a day. Plus trying to get Ashley and Anthony ready for their 1st day of school today. and to top it off, Brittany missed her 1st day due to a trip to the Dentist who informed me she needs 2 root canals, how do her teeth get that bad so fast? just was there for a cleaning in March!! Not sure if she will be able to go to school tomorrow, this morning her lip was at least 4 times the normal size, poor thing. I have never had a root canal, heck, I have never even had a cavity, so I do not know personally what she is going through, but it sure doesn't look fun!
I have not heard back from Cincinnati yet, so I am making a call, it's been 2 weeks today. (not that I'm counting) Hopefully I can get myself to the Dr. today, but I don't see it being able to fit in my schedule unfortunately. I just need a good ole shot in the butt of antibiotics!! Anyways... off to survive another day!
Love, Blessings, & Barefeet, Beckie

Hope For Hannah Benefit

This Was absolutley awesome!! Thankyou to everyone!

Khas News story

NTV News story

Have you figured me out yet??

okay okay, I'm here to update, as most of you know, I am not good at commincation, unless I can sing how I feel through a song! lol. But here we go....

Went to Cincinnati last week, Lots and Lots of questions!! 7 years worth of history to share so I am sure it is all overwhelming for them. Plus they drew a bunch of blood, then they said that they would be in touch and probably have us come back for some scopes and stuff.
My overall feeling is that they do not have the same sense of urgency that is needed for her. Ever since she has started this 24 hour TPN thing things have been crappy. There is not a day that goes by that she has not had to deal with headaches or abdominal pain, Her blood sugar has been low, her liver and kidney levals have been high, all common side effects of the TPN. She has gone over that hill of more bad days then good, and I am struggeling with my redheaded patience to get somebody to care enough to DO SOMETHING NOW!!
I just keep replaying in my head what the hospitalist in Omaha told me... " Go home and have a normal summer " None of my children have had a NORMAL summer because of this, we all have stayed home watching her get sicker and sicker. I'm constantly watching one of her sisters carry her up the stairs while her brother carries her pump, because she is to dizzy and weak. her burst of energy do not last more than a couple of hours, and they take everything out of her.

I am just tired of having someone so tiny yet strong have to fight so hard to live.

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Updates on Hannah

She has had a very rough couple of months. She now depends on a central line, (a tube that runs in her underarm up through her a vein in her neck and straight to her heart) for all her nutrition. which comes with alot of complications. Complications that apparently our local hospital wont touch and I have to rush her to ER in Omaha... 3 hours away.
Sunday morning on the 9th, Hannah, my BFF Sharon and I will be loading up in my lil Mini van and driving to Cincinnati Children's Hospital to see some specailists that hopefully will bring us some answers to what is the problem and how we fix it, or at least treat it.
Hannah remains strong and full of life. She knows no other way of living. she has lived with this for over 7 years.If it wasnt for her ability to laugh at this crazy life and make the best of it, I dont think I could. She is the one that reminds me everyday to keep fighting. To be strong in my faith, and live with the grace and dignity that has comes with living this life.
Please keep us in your prayers and we battle the road ahead. and the other drivers on it!! lol