Hannah has bee officially dx'd with Autoimmune Enteropathy, with IPEX syndrome not being ruled out. She is doing well and has kept herself out of the hospital for a wonderful 3 weeks now. This is a record!!
with this news comes much transition for me... mentally. We have a name for our enemy now, but he is so rare. I am still doing alot of studying, but from what it sounds like I think I need to really push this bone marrow transplant... If anybody can help me get my hands on this book please contact me!! Volume 1, 4th edition, pediactric Gastrointestinal Desease. I swear to God it is the book her Doc in Cincinnati are reading! The way they are treating her is qouted in here.
But anyway, I will try to snap out of my mental quick sand and get back to work, I promise! :)
I search a quiet place,
For reverent solitude,
One where I can fix,
My strained attitude.
I’m not in the mood,
To think or speak,
I feel kind of tired,
I feel kind of weak.
My brain won’t absorb,
The things you have to say,
I need a quiet place,
So I can find my way.
Back to this place,
Where I can hear your tune,
I’ll take a short detour,
But I’ll be back soon.
