Hannah's Wish is Granted!

 Make a Wish granted Hannah's wish Thursday with a huge all day shopping spree in Omaha. Hannah had a blast with her family, wish granter's, and her "body guard" limo driver.
 As her mother I can't express enough gratitude for giving Hannah the chance of a lifetime, it was truley a wish come true!

Home Sweet Home

After 19 days in the hospital, Hannah has come home!

 Long drive home was shortened with a long sweet nap :)

what an absolutley beautiful story Brian Mastre did on Hannah! We are so honored!

click here->  www.wowt.com/home/headlines/83772577.html

February 6, 2010

well we had a another rough spell, They started running TPN through Hannah's IV and it went downhill from there. Hannah's poor little veins are exhausted,  after finally getting a iv started Wednesday night, It only last 12 hours. After an emmotional episode our charge nurse was able to start another in her 1 and only vaible vein left in her arm. If this one goes they will try her feet next. They stopped the TPN and are running basic maintenance fluids through it now, to try to get this IV to last longer. She is now officially out of renal failure, Her kidneys and liver are back to normal levels. Her labs are still coming back positive for yeast in her bloodstream, so they still have her and antibiotics and antifungals. Thursday they did an ultrsound of her heart and found a thrumbos (blood clot) as of yet I have no idea what they are going to do about that. The Hospitalist has been consulting with oncology and cardiology. They think it's a source of infection for the yeast, so to give her an anti coagulant might put the yeast in other places they dont want it right now, but to leave it is also risky if it were to break off and move into her heart or brain.
    Yesterday was a nice calm day. with no TPN running she was much more comfortable and even got to go to Movie Night to go watch "UP" in the auditorium last night. They will be taking her down for surgery today or tomorrow to place a temporary line so they can start back up TPN. They said the line will just be temp, because they know full well it will get infected with the yeast, but she needs the access to give her her nutrition.
Hannah is the strongest person I know! she has done all this without taking ANY of the moriphine they have ordered for her.

Yesterday was a busy day! we all pushed Hannah a lil, and got her out of bed and into a bath, and even walked her to the playroom for a Game of WII with Dr. Dolterand Melissa. While she was busy I got a chance to go shopping with Sharon and Carole (Sharon's sister) Thak you Girls!! I so needed that :) When we got Hannah back to her room, She got a visit from the Rosenquest's. So nice to see people from home!! Makes me homesick. Then Channael 6 swooped in to do a story on Hannah and autoimmune enteropathy, which will air Sunday. Wow what a day, right?!

It wore her out, she ended the evening with a sore throat on top of her tummy pain. and then had 1 of her 2 iv's go bad and had to be pulled out. They started running TPN and lipids through the other (which is extremely painful and hard on your veins).

This morning Doc says he is checking with renal to see if her creatinine is low enough that her kidneys can handle contrast for a MRV of the veinous system, so they can map out where her new line will go. and get that surgery in the works. Her white blood cell count was elevated this morning so we are watching her sore throat closely. When you are immune compromised the littlest thing can go severe very fast.

We had almost 100 people join the Hope 4 Hannah Facabook group in 24 hours. Hannah was excited to see the numbers climb! Thanks so much for all your support!

Love, Blessings, & Barefeet,

Beckie

February of 2010 already....

Well, Hannah has been quite sick the last 5 days. Thursday morning Hannah woke up screaming and crying that her stomach hurt. I checked her temp and it was 103. I made some calls to home health and checked her temp again and it was 103.7. Called ambulance, by the time they got her to ER (which was not very long) It was 104.7. They admitted her to Mary Lanning and fought off temps all day. By the next morning they discovered she had staph and yeast infection in her Central line. and she was transferred by ambulance to Children's here in Omaha.

Hannah is septic, whichs means she is as sick as she possibly can get. the infection is in her blood and all through her body, causing all her organs to not function properly. Her liver and spleen are inflamed. Her kidneys are not functioning properly and she may have to receive dialysis. Appendicitis is also in question, but she is still to septic for it to be removed. They pulled out her brand new purple power line and she has 2 IV's (1 in each hand) to receive all her fluids and medicines. Yesterday she was more coherant, the fevers have stopped after they pulled her line, so that helps. Sharon's sister came out to visit and her and Sharon brought her some ballons which helped brighten up her room. I plan on trying to do more of that today to help cheer Hannah up.

I can't thank everyone enough for all the prayers we most certainly need it right now! And please don't forget to pray for Hannah's sisters and brother. They last time they seen their sister was when she was rushed out the door with 5 EMT's right b4 they left for school.