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Wednesday, July 18, 2007

Entry for July 18, 2007~ another update on my banana

Was in Omaha again Monday and then Grand Island yesterday. I've put 400 miles on my little car so far this week. Hannah and I both feel like we have walked 400 miles. She is passed out on the couch for the 2nd time today,and I am just mentally fried.
In Omaha we seen the feeding and growth team, includes 5 different doctors. She is 6yrs and 1 month, she weighs 14.2 kilos and is 100.5 cm tall(that is 3'3" and about 31 pounds) so she has maintained but not thrived at all. she is eating a very well balanced diet and on the pump 24 hrs a day. her formula alone is giving her 80 calories per ml and she gets 1400 ml a day, plus what she eats. They still cannot find any answers. She is going to have surgery on the 8th of August, they are going to put a button in her stomach for the feeding pump, so no more tubes up her nose. We will be there for about 2 or 3 days. Dr. Attard also talked about sending her to children's in Colorado. Do not know exactly when this will happen but it is in the planning stage now. They drew another 5 vials of blood and then we were on the road for our 3 hour drive home.
Yesterday I took all 4 kids in for their checkup and cleaning at the dentist. all went well. Hannah has gotten in a couple of her 6 year molars and it is causing some problems, Her little baby teeth are so crammed in there they are cricked. there is just no room. so we got some work to do there too.
Only 1 more month till school starts so getting all ready for that Anthony will be attending preschool this year at the public school, where does the time go...

Wednesday, July 11, 2007

July 11, 2007~ update on Hannah

Was back in Omaha yesterday. She had a MRI done ( It's amazing how strong she is, She is the size of a 3 year old. with her head all taped down and caged up, with her headphones on singing her heart out to Hannah Montana, I was in a rocking chair with earplugs and crying my eyes out, lol) Then we had an appt. with her neurosurgeon. She has a benign astrocytoma tumor. For treatment they will observe it closely and remove it when it when it gets bigger. He doesn't want to remove it now because of her other unrelated health problems, she is tiny and not strong enough physically. But praise God it is benign. she doesn't need radiation! We go back to Omaha next week to see the G.I. doctors.