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Tuesday, July 29, 2008

Hope for Hannah Benefit

Monday, July 21, 2008

My Baby Girl's video

Saturday, July 19, 2008

update on Hannah 7-18-2008

I got a call from the immunoligist. He said he does not agree with the Denver doctors that her problems are related to food allergies, he will be consulting more with her G.I. dr. I feel so lost and frustrated right now. this news has set us back to where we were before we even went to denver. I finally felt we were on the right road because we had a plan of action, and knew what we were dealing with. now all of that is thrown out the window.

Thursday, July 17, 2008

Hannah's Friends - Compassionate Support for Families with Critically-ill Children

Families around the world, regardless of culture, can relate to the emotions and difficulties that surround the potential loss of a child to a life-threatening illness.
Each year, more than 160,000 children die of cancer. Four in five are from low and middle income countries where childhood cancer is just one of many priorities. The treatment and care of children with these and other life-threatening childhood diseases requires a whole interdisciplinary team, to provide not just the medical treatment of the child, but also the psychosocial support for the child and the whole family. Community volunteers are an integral part of providing such care.
Impacts on Families What is not widely known or fully understood by the population-at-large are the broad and formidable challenges presented to a family that embarks on a journey to care for a child with life-limiting or life-threatening illness. The ongoing pilot program in Northern California, is rapidly illustrating that having someone with previous experience on such a journey to provide guidance and support can help these families immensely.
The Need for the Program In June 2006 PBS aired a documentary titled A LION IN THE HOUSE that illustrates very clearly the need for Hannah's Friends. The film follows the stories of five exceptional children and their families as they confront pediatric cancer. This film documents the stresses that can tear a family apart and also sheds light on growing up in the shadow of illness, as a patient and a sibling of a patient.

Saturday, July 12, 2008

no training wheels

July 12, 2008

"Dr. Mark" The build a bear that Dr. Mark Puccioni the neurosurgeon, gave Hannah at her appt. in Omaha Monday the 7th.
Hannah made this with clay for me. :)
She also made this... notice the mommy bird is feeding the baby a worm.
what a man, what a man, what a mighty good man he is!

Hannah on the way home from Omaha.

Friday, July 04, 2008

wow a video! lol

Hope for Hannah