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Saturday, December 20, 2008

Everybody knows me, Mama

And again Hannah is a star. She appeared with Santa Clause in the Omaha World Herald, and the next day was interviewed by KPTM 42, an Omaha TV station. They asked her what the best thing about Christmas was and she said, " Having your whole family together."

So far what I have been told is that they are going to try her on these IVIG infusions for 3 months. If they are not working then they want to start her on chemo meds and start feeding her TPN. which means they will start feeding her through an IV into her vein. Both which are dangerous for someone with a compromised immune system. My GI doc is not satisfied with this solution and He is consulting with Denver childrens an John Hopkins Hospital, for their opinions.

I can't even begin to explain what is going on in my head. I think maybe I'm still in shock over this. If you spend antime with Hannah, you would know she has such a wonderful outlook on life that It's hard to believe that she is as sick as she really is. Please keep us and the Doctors in your prayers.