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Sunday, January 04, 2009

Back to School

They have always been so close... like twins
Hannah's big little brother

Well tomorrow the kids go back to school for the first time in 2009. I have enjoyed them home but at the same time praise God they have something else to do for 8 hours of the day. Getting used to Hannah's new schedule has been exhausting. Her pump is running faster at night so I am up more with accidents and filling up her formula. Reminding her that she can not spin her new button around, or to be more careful when she has her pump attached to the pole every 5 minutes. With a GJ tube there is a tube that runs all the way to her intestines, pulling the tube out or displacing the tube out of her intestines and into her stomach results in a tube replacement procedure under sedation. Hannah has a difficult time with anesthesia because she is MH susceptible. Sometimes getting Hannah to realize her disabilities is very difficult, Like yesterday when her brother and her were jumping off the bed to see who could get the farthest... attached to an IV pole... I think the heart doc is going to have to adjust my heart meds!